Rare Disease Day Conference: From Draft to Action Plan

  • 09 Mar 2021
  • 11:00 AM
  • 10 Mar 2021
  • 2:00 PM
  • Virtual

Registration


Registration is closed

Beyond the Moon… Shooting for Mars…Planning for Canada’s Rare Drug Strategy

The time has come for Canada to fulfill it's commitment to implementing a "forward-looking" Rare Drug Strategy that will assure equitable access to "state-of-the-art" medicines for all Canadians regardless of where they live, their drug coverage, and their unique circumstances.

Join the Canadian Organization for Rare Disorders in two days of high-powered discussions with patients and families, researchers, clinicians, policymakers/influencers, and manufacturers to help shape Canada's pharmacare and healthcare landscape for optimal drug access. We will explore strategies for providing accurate and timely screening and diagnosis, access to experts and networked centres of excellence, support for community resources including patient associations, and investment in research and drug discovery ... in addition to financing optimal for rare disease therapies.

The conference slides can be downloaded here: https://bit.ly/3qytFk1

The conference recordings are available on CORD's YouTube channel. 

Day 1: https://youtu.be/f6ymxKn9DMA 

Day 2: https://youtu.be/_7y1Tv35M7g 

Final Agenda

Please contact us at info@raredisorders.ca for any questions about this event. 

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