Webinar 7: How Other Countries Provide Access to Rare Disease Drugs: What Canada can Learn … or Not

Webinar 7: January 29 @ 11 am – 12 pm EST

Designing Pan-Canadian Rare Drug Framework

How Other Countries Provide Access to Rare Disease Drugs: What Canada can Learn … or Not

Welcome to 2nd Webinar in the 2021 CORD Consultations on the Pan-Canadian Rare Drug Framework. Many thanks to all who contributed to our previous Crowdsourcing Webinar. This week is a MAJOR information dump from Canada’s leading expert on international approaches to Rare Disease Drug Access.

Topics:
Similar but not Same: France, Germany, UK, Italy and Spain
Who Does it Best for Patients with HPP, XLH, MPS IV, SMA, and CF?
Value of A Rare Drug: What is Right “ICER” … or Does It Matter?
Whither EDRD Supplemental Process … or Does It Matter?
Principles for Rare Drug Framework/Program/Strategy
Keynote Speaker: Dr. Tania Stafinski, PRISM (Promoting Rare Disease Innovations Through Sustainable Mechanisms)