Opportunity of a Lifetime: Federal commitment of $1 billion to set up Canada’s Rare Drug Strategy supported by Rare Disease Strategy
Updated Final Agenda: https://bit.ly/2IVmMtx
Why Now? Canadians have the Opportunity of a Lifetime to design the world’s best Rare Drug Program directed to assure patients have access to today’s and tomorrow’s therapies. The Canadian government has committed $1 billion to set up Canada’s Rare Disease Drug Strategy, with on-going invest of $500 million each year. The Rare Drug Program will be grounded in Canada’s Rare Disease Strategy.
What is the Vision? The Pan-Canadian Rare Drug Program will assure innovative and essential rare therapies are delivered to patients as soon as possible and consistent with Canadian principles of accessibility, comprehensiveness, universality, portability, and publicly accountable administration.
What is the Task? Stakeholders from all sectors will engage in a structured, informed conversation to design a blueprint for a Pan-Canadian Rare Drug Program that will set the course for 10 months of cross-Canada dialogue to arrive at a plan for implementation by January 2022.
For any question about this event, please email us at; info@raredisorders.ca