A Moon Shot for Rare Disorders: Leave No one Behind
Objectives of Conference
Create a shared understanding of the patient journey and what “good” looks like
Mobilize all stakeholders around common vision for Rare Disease Canada
Create a guiding framework to map current resources, define gaps, identify opportunities and challenges, and prioritize needs
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Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.